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	<title>Nicole Rogers Photography &#187; Serving opportunities</title>
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		<title>{Running for Lee}&#8230;Charlotte, NC</title>
		<link>http://nicolerogersphotography.com/blog/running-for-lee-charlotte-nc/</link>
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		<pubDate>Fri, 19 Aug 2011 17:48:39 +0000</pubDate>
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		<description><![CDATA[It has been a joy getting to know and photograph baby Lee this past year.  Lee is a very special one and a half year old little boy.  Lee went through a series of genetic testing this summer and confirmed that he had Timothy&#8217;s Syndrome, a very rare heart condition.  There have been only 28 cases of [...]]]></description>
			<content:encoded><![CDATA[<p>It has been a joy getting to know and photograph baby Lee this past year.  Lee is a very special one and a half year old little boy.  Lee went through a series of genetic testing this summer and confirmed that he had Timothy&#8217;s Syndrome, a very rare heart condition.  There have been only 28 cases of Timothy&#8217;s identified so far. </p>
<p>Lee&#8217;s parents are remarkable and are putting their hope in the Lord.  Lee&#8217;s mother wrote on his <a href="http://www.caringbridge.org/visit/leeciciarelli/mystory">Caring Bridge</a>, even after testing and surgery, <em>&#8220;Clearly he was telling us from the very beginning of this journey that he is pleased to be alive and present in this very moment &#8211; and he is teaching us to be equally pleased to remain present and to savor, enjoy and appreciate every single minute we have with him.  He has already taught us some incredibly important lessons.&#8221;</em></p>
<p>Lee&#8217;s uncle is running a half-marathon ((San Jose Rock n&#8217; Roll, Oct. 2nd) to benefit the Sudden Arrhythmia Death Syndromes Foundation (www.sads.org), in honor of little Lee.  If you or your company would like to donate whatever you can, you may do <a href="http://www.crowdrise.com/heartofalion">so here.</a>  All my love and prayers Mary Ann, Christian and Lee.  <img src='http://nicolerogersphotography.com/blog/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p><a rel="attachment wp-att-3744" href="http://nicolerogersphotography.com/blog/running-for-lee-charlotte-nc/lee-6983-copy-2/"><img class="aligncenter size-full wp-image-3744" title="lee-6983 copy" src="http://nicolerogersphotography.com/blog/wp-content/uploads/2011/08/lee-6983-copy.jpg" alt="lee-6983 copy" width="765" height="514" /></a></p>
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